chca Sponsors 2024 bill

SB 1099 Newborn screening: genetic diseases: blood samples collected. (Nguyen)

PROBLEM: The genetic material of mothers and children is being stored in the California Biobank and used for research for public health purposes, but there is no transparency into what research is being conducted, what entities are utilizing the residual blood samples, or what specific public health benefits have been achieved.

SOLUTION: This bill would ensure that the public has access to information about the activities of the California Biobank by requiring CDPH to annually prepare a report, deliver a copy of the report to the Legislature, and post the report on their website. The report would be required to contain information such as:

  • The total number of any residual screening specimens stored at the California Biobank.
  • The number of inheritable conditions identified by the original screening tests the previous calendar year.
  • The number of projects utilizing specimens from the California Biobank and the number of specimens each project is using.
  • The identity of each entity performing a research project, the specific nature of the research they are performing, and the potentially substantial public health benefit from the research.

SB 1099
Newborn Screening

2024 Bills CHCA Supports

AB-1977 Health care coverage: behavioral diagnoses

This bill would prohibit a health care service plan contract or health insurance policy from requiring an enrollee or insured previously diagnosed with pervasive developmental disorder (PDD) or autism to be re-evaluated or receive a new behavioral diagnosis to maintain
coverage for behavioral health treatment for theircondition.

AB-2051 Psychology interjurisdictional compact

AB 2051 would ratify, and approve the Psychology Interjurisdictional Compact (PSYPACT), an interstate compact that allows for the practice of telepsychology
and temporary in-person psychology across state lines.

AB 2300 Medical devices: Di-(2-ethylhexyl) phthalate (DEHP).

This bill would ban the manufacture, sale and use of Di(2-ethylhexyl)phthalate (DEHP) in IV bags and tubing in California. DEHP has been linked to breast, liver, lung, and testicular cancer; it is an endocrine disrupting compound linked to early puberty, decreased sperm count and infertility.

SB 445 Special education: individualized education programs: translation services (portantino)

This bill would require a local educational agency to ensure that the parent understands the proceedings during the planning process for the individualized education program, including communicating in the parent’s native language, or in another mode of communication used by the parent, arranging for an interpreter, providing translation services, and providing alternative communication services.

AB 2377 Pupil instruction: physical education: religious exemption: fasting.
This bill would require a pupil in kindergarten or any of grades 1 to 12, inclusive, to be excused from engaging in any physical activity components of a physical education course during a period of religious fasting upon the submission to the school principal of written notification from the pupil’s parent or guardian.

AB-2105 Coverage for PANDAS and PANS.

This bill would require a health care service plan contract or health insurance policy to provide coverage for the prophylaxis, diagnosis, and treatment of Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS) and Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) that is prescribed or ordered by the treating physician and surgeon. The bill would prohibit coverage for PANDAS and PANS from being subject to a copayment, coinsurance, deductible, or other cost sharing that is greater than that applied to other benefits.

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