chca Sponsors 2024 bill

SB 1099 Newborn screening: genetic diseases: blood samples collected. (Nguyen)

PROBLEM: The genetic material of mothers and children is being stored in the California Biobank and used for research for public health purposes, but there is no transparency into what research is being conducted, what entities are utilizing the residual blood samples, or what specific public health benefits have been achieved.

SOLUTION: This bill would ensure that the public has access to information about the activities of the California Biobank by requiring CDPH to annually prepare a report, deliver a copy of the report to the Legislature, and post the report on their website. The report would be required to contain information such as:

  • The total number of any residual screening specimens stored at the California Biobank.
  • The number of inheritable conditions identified by the original screening tests the previous calendar year.
  • The number of projects utilizing specimens from the California Biobank and the number of specimens each project is using.
  • The number of published research studies that used or referenced biospecimens from the Biobank and the potentially substantial public health benefit from the research.

SB 1099
Newborn Screening

2024 Bills CHCA Supports

AB-1977 Health care coverage: behavioral diagnoses

Status: Vetoed by Governor.

This bill would prohibit a health care service plan contract or health insurance policy from requiring an enrollee or insured previously diagnosed with pervasive developmental disorder (PDD) or autism to be re-evaluated or receive a new behavioral diagnosis to maintain coverage for behavioral health treatment for their condition.

AB 2300 Medical devices: Di-(2-ethylhexyl) phthalate (DEHP).

Status: Signed into law.

This bill would ban the manufacture, sale and use of Di(2-ethylhexyl)phthalate (DEHP) in IV bags and tubing in California. DEHP has been linked to breast, liver, lung, and testicular cancer; it is an endocrine disrupting compound linked to early puberty, decreased sperm count and infertility.

AB 2377 Pupil instruction: physical education: accommodation: religious fasting.

Status: Signed into law.

This bill would require a pupil in kindergarten or any of grades 1 to 12, inclusive, to be granted an accommodation in connection with engaging in any physical activity components of a physical education course during a period of religious fasting upon the submission to the school principal of written notification from the pupil’s parent or guardian.

SB-1266 Product safety: bisphenol.

Status: Signed into law.

This bill would prohibit the manufacture, sale, or distribution of any feeding, sucking, or teething product that contains bisphenols and would additionally prohibit manufacturers from replacing any form of bisphenol with any chemical identified by the department as a Candidate Chemical, as specified..

AB-1864 Pesticides: agricultural use near schoolsites: notification and reporting.

Status: Signed into law.

This bill would ensure that children are not being exposed to pesticides while in school by requiring a Notice of Intent for applications of restricted pesticides that are within a quarter mile of school sites and that would use an application method restricted by current regulation and would expand the Pesticide Use Near Schools regulations to include private schools.

AB-2105 Coverage for PANDAS and PANS.

Status: Signed into law.

This bill would require a health care service plan contract or health insurance policy to provide coverage for the prophylaxis, diagnosis, and treatment of Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS) and Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) that is prescribed or ordered by the treating physician and surgeon and is medically necessary, as defined. The bill would prohibit coverage for PANDAS and PANS from being subject to a copayment, coinsurance, deductible, or other cost sharing that is greater than that applied to other benefits.

AB-2316 Pupil nutrition: substances: prohibition.

Status: Signed into law.

This bill would prohibit a school district, county superintendent of schools, or charter school maintaining K-12 from offering a nutritionally adequate breakfast or lunch containing specified substances, including, among others, red 40 and yellow 5 and would prohibit a school operated and maintained by a school district or county office of education from selling food or beverages, except for food items sold as part of a school fundraising event, containing those specified substances.

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