CHCA Sponsors CA Senate Bill to Bring Transparency to the California Biobank

CHCA Sponsored Bill
2024 Legislation

Check Out All of the Bills CHCA is Supporting this Session

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Working Together for a Healthier California

CHCA Sponsors Bill to Bring Transparency to the California Biobank

The genetic material of mothers and children is being stored and used for research for public health purposes, but there is no transparency into:
  • what research is being conducted,
  • what entities are utilizing the residual blood samples, or
  • what specific public health benefits have been achieved.
SB 1099 would ensure that the public has access to information about the activities of the California Biobank by requiring CDPH to annually prepare a report, deliver a copy of the report to the Legislature, and post the report on their website.
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CHCA Sponsors Bill to Protect the Genetic Privacy of Children

Millions of mandatory newborn screenings are completed each year. The state of California indefinitely stores the residual blood samples of newborns and makes the samples available to third party researchers. This is done without the prior consent from parents.


SB 625 Newborn screening: genetic diseases: blood samples collected is a bill that would:

  • Require consent for the storage of a newborn’s residual blood sample and the use of the sample for research purposes.
  • Require written acknowledgment from the parent or guardian that they have received information regarding the storage, retention, and use of the newborn child’s blood sample for medical research.
  • Prohibit any residual newborn screening specimen from being released to any person or entity for law enforcement purposes.

READ MORE...

Press Releases

SACRAMENTO, Calif., March 2, 2023 /PRNewswire/ -- In an effort to protect the genetic privacy of children, California Health Coalition Advocacy, a non-profit organization based in Sacramento, has sponsored a bill, "SB 625 Newborn screening: genetic diseases: blood samples collected," introduced by Senator Nguyen on February 16, 2023.

August 26, 2021California Health Coalition Advocacy Sponsors Resolution to Protect Voluntary and Informed Consent10, 2020 - COVID-19 Response Shines Light on Need for Civil Liberty Protections: California Organization Drafts Bill to Fix Health and Safety Code

March 26, 2020 - Prominent Vaccinologists Caution Against Accelerating COVID-19 Vaccine to Market Amid Pandemic, Public Health Resolution Needed to Raise Awareness

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CHCA's Resolution Introduced 8/18/21

This measure would urge the Legislature and the Governor to take actions to​ protect Californians’ right to make their own health and medical decisions. The measure would urge the Legislature to amend existing law in order to require the voluntary and informed consent of an individual​ or their guardian, and to authorize the consent’s withdrawal without prejudice, for any​ preventive, diagnostic, or therapeutic medical intervention taken by the State Department​ of Public Health to ascertain the nature of a contagious, infectious, or communicable​ disease and to prevent its spread.
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California Health Coalition Advocacy

LEGISLATION

California Health Coalition Advocacy lobbies for legislation that impacts the air we breathe, the food we consume, the water we drink and touch, and the wellness opportunities we have. CHCA supports bills that would impact the health of Californians, including topics such as: birthing options, pesticides and harmful chemicals in schools and playgrounds, flame retardants, and professional cosmetic product labeling

List of 2023 Legislative Bills CHCA Supports/Opposes

CHCA 2022 Proposed Legislation

CHCA Future Proposed Legislation

List of 2023 Legislative Bills CHCA Supported/Opposed

List of 2022 Legislative Bills CHCA Supported/Opposed

List of 2020 Legislative Bills CHCA Supported

List of 2019 Legislative Bills CHCA Supported



California Health Coalition Advocacy

AIR

California residents deserve clean air. Although the state has enacted air pollution control programs that primarily relate to vehicles, it has not adequately addressed other forms of air pollution. Consumers are bombarded with unwanted effects of agricultural spraying, pest abatement chemicals, geoengineering, and electric and magnetic field radiation.


California Health Coalition Advocacy

FOOD

CHCA agrees with Hippocrates, who said, "Let food be thy medicine." Consumers in California want to have access to foods that improve health. But, many of our foods are contaminated with harmful chemicals. CHCA supports legislation that would grant consumers greater awareness and options when it comes to foods that heal or harm.

California Health Coalition Advocacy

WATER

Water is the foundation of life. What is in it and what is not in it are vitally important to health. All over the world and right here in California, our drinking water and the water we swim and bathe in are polluted at a health damaging level. CHCA supports efforts to ensure cleaner water for all.


California Health Coalition Advocacy

WELL-BEING

Californians have vast, but limited opportunities for health and well-being. CHCA will broaden consumer options for the avoidance and reversal of disease, birthing choices, alternatives to prescription drugs, informed consent to treatment and products as well as increased access to specialized health practitioners.

Ways to participate

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Donate

As a donor, you are supporting CHCA efforts to work toward a healthier California through the legislative process. Your generous non-tax-deductible contribution allows us to facilitate change in California through lobbying and grassroots efforts.

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As a subscriber to our newsletter, you are kept informed on current issues related to our Mission, Vision, and Commitment. Each session, when legislation is introduced, CHCA will inform you of bills that might impact your health and the health of Californians.

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As a volunteer, who wants to improve the health of Californians, you are part of our advocacy team volunteering on a specific state-wide project or on local grassroots efforts. CHCA will connect you with like-minded advocates in your area.

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Partner

As an ally, who shares our mission, your passion is our passion. Together we can impact the health of Californians by successfully making legislative changes. If you or your organization are interested in being a coalition ally, join today.

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CHCA Endorsement

Diane Miller,
Law and Public Policy 
at
National Health Freedom Coalition

 

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901 H Street, Suite 120 #1061
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(916) 572-4465
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@CaliforniaHealthCoalition.org

CALIFORNIA
HEALTH
COALITION
ADVOCACY

Working Together for a Healthier California



CHCA is a 501(c)(4) and donations are not tax deductible.
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