CHCA Sponsors Bill to Protect the Genetic Privacy of Children
SB 625 Newborn screening: genetic diseases: blood samples collected is a bill that would:
- Require consent for the storage of a newborn’s residual blood sample and the use of the sample for research purposes.
- Require written acknowledgment from the parent or guardian that they have received information regarding the storage, retention, and use of the newborn child’s blood sample for medical research.
- Prohibit any residual newborn screening specimen from being released to any person or entity for law enforcement purposes.