TaKe Action 2:
Submit Your Opposition Letter to Policy Committees
Make sure that your position on this bill is heard and put on record by submitting you comments to the California Legislature Position Letter Portal.
Comments will be shared with the appropriate policy committee members hearing the bill.
"I oppose AB 1797 which would require health care providers and other agencies to disclose immunization information to a state database, add the patient’s race or ethnicity to the list of information being disclosed, and authorize schools, childcare facilities, family childcare homes, and county human services agencies to use the specified immunization information, in the event of a public health emergency, to perform immunization status assessments of pupils, adults, and clients. In order to protect the medical privacy of Californians, any state information system should be strictly opt in. No private medical information should be shared without the express written permission of the patient or parent/guardian of the patient."
You might add a personal experience or talking points outlined below.
Talking Points for AB 1797
Specific Ask: Oppose AB 1797 or abstain from voting on the bill.
Main Talking Points
- Any private medical information should only be stored and shared with the express written permission of the patient or the parent or guardian of the patient. Currently, the only option for patients is to refuse to allow their personal medical information to be shared, however, the local health department and the State Department of Public Health may maintain access to the information. The CAIR2 database should be an opt in system.
- The risk of violating patient privacy is significant. There is a history of database breaches in California. Here are two recent examples of privacy breach in California:
- Just this year, the State Bar of California experienced a data breach of confidential information. https://www.latimes.com/california/story/2022-02-27/california-bar-investigates-possible-data-breach-after-discipline-records-published-online
- In 2018, the California Department of Developmental Services notified 582,174 patients that their protected health information had potentially been compromised. https://www.hipaajournal.com/california-dept-of-developmental-services-582000-patients-phi/
- The California Constitution gives each citizen an "inalienable right" to pursue and obtain "privacy.” Many other California laws protect the medical information of individuals.